Imagine you have a disease that prevents you from sweating through your skin pores. Oh my goodness!
This group of people, who have a rare disorder and live in Kapua village on the shores of Lake Turkana in Kenya, do not sweat at all.
There are about 39 people in the community at the moment. Due to the rare condition, most community members die at a young age.
Stories have it that it all began when a Turkana man named Illimanyang married a woman from the minority El Molo community in neighbouring Marsabit County about two centuries ago. The aftermath of their marriage sparked the formation of the Illimanyang community group.
Members of this minority group, the majority of whom are men, have dry skin and no hair on their heads. They have only two front incisor teeth, a bald head covered in sparse brown hair, and cracked skin.
According to the Genetic and Rare Diseases Information Center (GARD), hypohidrotic ectodermal dysplasia (HED), a genetic skin disease, has common symptoms such as missing teeth, sparse scalp and body hair, and a reduced ability to sweat.
According to the health website, there is no specific treatment for HED. “The disorder is managed by treating the various symptoms. It is recommended that patients with abnormal or absent sweat glands live in places with air conditioning at home, school, and work.
The Ilimanyangs, on the other hand, believe that this disorder is a curse inflicted by their ancestors, who were said to have raided a community in Turkana, killing and stealing livestock.
The rival community cast a spell, which is why they are experiencing problems. Surprisingly, their condition only affects men.
And because their skin disorder is passed down from father to son, it’s a surprise that their female offspring are unaffected.
Their existence is solely dependent on water. To keep their bodies cool, they always have water all over them and are even forced to carry water when they have to go outside.
When the temperature increases, they are forced to move around with jars and jerricans to keep cool nearly every single hour.
And this is because their bodies have no pores, their health condition makes their body temperatures rise to a higher level.
Parents have to closely monitor their children and ensure that water is within their reach even when they are playing with other kids.
One of their major grief is that, unlike other children, they are unable to chew a meal or, in some cases, meat.
On the issue of marriage, health experts have warned the Ilimanyang against intermarrying in order to prevent the trait from being passed on to others.
Surprisingly, members of the community who moved away from the lake and intermarried with people from other communities do not have the rare disorder.
This group has been advocating for years for special recognition as a community with a rare disorder so that health authorities can closely monitor and pay attention to them.
it’s Worthy to note that over the years, non-governmental organizations (NGOs) that have visited the Ilimanyang on the shores of Lake Turkana provide them with skin ointment to protect them from direct sunlight and heat, locals said.
Today, residents, particularly those who fish for a living, rely on the lake for survival. as it is what keeps them alive
Do you believe they were cured as they claimed?
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